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news Scmp World 2026-04-19

Hong Kong SMA Patients Plea for Expanded Subsidies for Injection Therapy

Patients in Hong Kong with spinal muscular atrophy (SMA) have urged the government to expand subsidized medicine options for adults. They noted that the lack of affordable adult care has led to a deterioration in their quality of life.


Spinal muscular atrophy patients have urged the Hong Kong government to expand subsidised medicine options for adults to increase their chances for a better quality of life, with some saying their condition deteriorated after growing up without affordable care. Lui Man-lam, president of the Hong Kong Neuro-Muscular Disease Association, said at a press conference on Sunday that while oral medicine subsidies for those aged 25 or above were rolled out early this year, adult patients still lacked...

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